ICC Members

Isaac and Rose Nassau Professor of Orthopaedic Molecular Medicine

Co-Director, Center for Research in FOP & Related Disorders
The Perelman School of Medicine – The University of Pennsylvania
Department of Orthopaedic Surgery
3737 Market Street – Sixth Floor
Philadelphia, PA 19104, USA

Email: Frederick.Kaplan@uphs.upenn.edu

Chair, Division of Geriatric Medicine & Gerontology

Robert and Arlene Kogod Professor of Geriatric Medicine
Mayo Clinic College of Medicine
200 First Street, SW
Rochester, MN 55905, USA

Email: Pignolo.Robert@mayo.edu

Professor of Medicine

Department of Endocrinology, Faculty Practice
University of California-San Francisco
400 Parnassus Ave., 5th Floor A550
UCSF Box 1222
San Francisco, CA 94143-1222, USA

Email: edward.hsiao@ucsf.edu

Associate Professor of Clinical Medicine

Division of Endocrinology, Diabetes and Metabolism;
Ian Cali Clinical Scholar in FOP, Department of Orthopaedic Surgery,
The Perelman School of Medicine – The University of Pennsylvania
Penn Medicine University City
3737 Market Street, 3rd floor
Philadelphia, PA 19104, USA

Email: Mona.AlMukaddam@pennmedicine.upenn.edu

Consultant Doctor for the Brazilian FOP Association

Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa
Office: Rua Pedro de Toledo 129 cj 121- Vila Clementino
Cep-04039-001
São Paulo-SP, Brazil

Email: patricia.delai@einstein.br; patricia.delai@gmail.com

Rheumatologist & Honorary Senior Lecturer in Metabolic Bone Disease

The Royal National Orthopaedic Hospital
Stanmore, Middlesex HA7 4LP
United Kingdom

Email: richard.keen1@nhs.net; DrRichardKeen@aol.com

Paediatric Rheumatologist

Children's Hospital of Eastern Ontario
401 Smyth Rd
Ottawa, ON K1H 8L1
Canada

Email: cscott@cheo.on.ca

Amsterdam University Medical Centers (Amsterdam UMC) location
VU University Medical Center (VUMC) Amsterdam
Department of Internal Medicine/Section Endocrinology
De Boelelaan 1117
1081HV Amsterdam, The Netherlands

Email: emw.eekhoff@vumc.nl

The James D. Wentzler Professor and Chairman Emeritus

Department of Anesthesiology
Thomas Jefferson University
111 South 11th Street, Suite G-8490
Philadelphia, PA 19107, USA

Email: zvi.grunwald@jefferson.edu

Centre de Référence Maladies Osseuses Constitutionnelles
Departement de Génétique
Hôpital Necker-Enfants Malades
Paris, France

Email: genevieve.baujat@nck.aphp.fr

Professor and Chair

Sidney Kimmel Medical College
Thomas Jefferson University
909 Walnut Street – Floor 3,
Philadelphia, PA 19107, USA

Email: Robert.Diecidue@jefferson.edu

Professor Orthopaedics

Department Paediatric Orthopaedics
Ida Scudder Chair for Clinical Research
Christian Medical College Hospital
Vellore  632004
India

Email: madhuriwalter@hotmail.com

Asst. Clinical Prof Schulich School of Medicine and Dentistry

Pediatric Oral Health and Dentistry
389 Hyde Park Road
London, Ontario N6H 3R8, Canada

Hospital email: clivesf@mac.com

Professor and Chief

FOP Clinical Advisor, Argentina
Pediatric Rheumatology Section
Department of Pediatrics
Hospital Italiano de Buenos Aires
Gascón 450, 1181
Ciudad Autónoma de Buenos Aires, Argentina

Email: carmen.decunto@hospitalitaliano.org.ar

Professor

Universidad Nacional Autonoma de Mexico
Researcher at the Genomic Medicine Department
National Institute of Rehabilitation, Mexico City, Mexico

Email: dr_genetica@yahoo.com

Seoul National University Hospital
Seoul, Jongno District, South Korea
128 Yeongeon-dong, Jongno District, Seoul, South Korea

Email: jmko@snu.ac.kkr

Atlantic Paeds and Surgery
Suite 007 Ground Floor Granger Bay Court
Granger Bay Boulevard,
Waterfront, 8001

Email: raphaellapaed@atlanticchild.com

Email: clemens.stockkluasner@klinikum-gap.de

Associate Professor in Pediatrics

Department of Clinical Sciences
Section: Pediatrics
Umeå universitet, Klinisk vetenskap, 901 85 Umeå

Email: Staffan.Berglund@umu.se

Department of Anesthesia
Perioperative Care
University of California, San Francisco
Associate Professor
Department of Anesthesia and Perioperative Care
513 Parnassus Avenue, S256C, 
Medical Sciences Building (MSB)
University of California - San Francisco
San Francisco, CA 94143

Email: xiaobing.yu@ucsf.edu

Rheumatology Department
2ª floor centre
Ramón y Cajal University Hospital

Email: javierbachiller@gmail.com

Staff

General Internal Medicine and Endocrinology
Department of Medicine and Joint Department of Medical Imaging
University Health Network and Sinai Health System
Senior Scientist, Toronto General Hospital Research Institute and Schroeder Arthritis Institute

Email: angela.cheung@uhn.ca

Université Paris-Cité
Médecine Bucco-dentaire
Service de Chirurgie Maxillo-Faciale et Chirurgie Plastique
CRMR  MAFACE Fentes et Malformations faciales, Necker Enfants Malades
Institut Imagine, Plateforme Data Sciences

Secrétariat : 01.71.39.67.59

Email: moutiatou.aboudou@aphp.fr

Facharzt für Kinder- und Jugendmedizin, Spez. Pädiatrische Rheumatologie
FA Sonographie des Bewegungsapparates SGUM
Degum III Muskuloskeletaler Ultraschall
Co-Chefarzt Kinderrheumatologie / Interdisziplinäres Zentrum für seltene Krankheiten Kinder und Erwachsene
Kinderspital Zentralschweiz und Kantonsspital Luzern
Spitalstrasse | 6000 Luzern 16

Tel: 041 205 11 11

Email: johannes.roth@luks.ch

Professor

Division of Pediatric Orthopaedics
Seoul National University Children’s Hospital

Adjunct Professor

Departments of Orthopaedic Surgery and Genetics
The Center for Research in FOP & Related Disorders
The University of Pennsylvania School of Medicine and
Professor, Departments of Surgery and Pediatrics
Director, Surgical Immunology
Georgetown University

Director

Department of Endocrinology Tongji Hospital Shanghai Tongji University

Professor Emeritus

Department of Internal Medicine
Division of Endocrinology
University Hospital Vrije Universiteit

Department of Pediatrics
Klinikum Garmisch-Partenkirchen