ICC COMMITTEES

ICC Officers

  • Marelise Eekhoff

    CHAIR

  • Alberto Hidalgo

    VICE CHAIR

  • Clive Friedman

    SECRETARY/TREASURER

  • Patricia Delai

    SECRETARY/ TREASURER ELECT

Governance & Membership Committee (G&MC) 

Function: To establish the ICC governing rules, membership terms, auditing processes, bylaws

Goals for 2026: To fill the Full membership slots and develop a physician database for potential members.

  • Robert Pignolo

    CHAIR

  • Clive Friedman

     CHAIR ELECT

Ethics Committee

Function: To guard the health and safety of FOP patients by supporting transparency and compliance with Good Clinical Practices

Goals for 2026: More regular meetings and adding a Conflict of Interest form to the website.

  • Chris Scott

    CHAIR

  • Carmen De Cunto

    CHAIR ELECT

Communications & Relations Committee

Function: To provide the external communications to the public

Goals for 2026: Plans are to increase ICC visibility including sending scientific updates, maintaining a newsletter, updating the website and addressing FOP community questions.

  • Patricia Delai

    CHAIR  

  • Chris Scott

    CHAIR ELECT

Publications Committee

  • Ed Hsiao

    CHAIR 

  • Robert Pignolo

    CHAIR  ELECT

Clinical Trials Committee

Goals for 2026: Key topics include the management of Clinical trials and relationships with the industry. Including updating editorials to better explain trial processes to patients.

  • Richard Keen

    CHAIR

  • Genevieve Baujat

    CHAIR ELECT 

Task Force on Standardization of Tissue Harvesting

  • CHAIR

Project DES-IRE

  • Fred Kaplan

    CHAIR