MEDIA
Key FOP Publications
We are delighted that there is a large and growing number of publications related to FOP. Below are a few selected publications that support the core knowledge about FOP. Please contact any member of the ICC if you feel additional publications should be added!
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Hyperactive BMP and Mechanosignaling Remodel Chromatin to Drive Aberrant Osteogenesis in FOP
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Editorial — The Twilight Zone: Between Disappointment and Hope in Clinical Trials for FOP (pdf)
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Thoracic deformity in fibrodysplasia ossificans progressiva (pdf)
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Special considerations for clinical trials in fibrodysplasia ossificans progressiva (pdf)
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The FOP Treatment Guidelines (PDF)
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Clinical staging of Fibrodysplasia Ossificans Progressiva (pdf)
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A cumulative analogue joint involvement scale (CAJIS) for fibrodysplasia (pdf)
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Longitudinal patient reported mobility assessment in FOP (pdf)
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The Natural History of Flareups in FOP (pdf)