International Clinical Council on
Fibrodysplasia Ossificans Progressiva
ICC Members
Mona Al Mukaddam, MD, MS, CCD
Associate Professor of Clinical Medicine
Division of Endocrinology, Diabetes and Metabolism;
Ian Cali Clinical Scholar in FOP, Department of Orthopaedic Surgery,
The Perelman School of Medicine – The University of Pennsylvania
Penn Medicine University City
3737 Market Street, 3rd floor
Philadelphia, PA 19104, USA
Email: Mona.AlMukaddam@pennmedicine.upenn.edu
Genevieve Baujat, MD
Centre de Référence Maladies Osseuses Constitutionnelles
Departement de Génétique
Hôpital Necker-Enfants Malades
Paris, France
Email: genevieve.baujat@nck.aphp.fr
Tae-Joon Cho, MD
Professor
Division of Pediatric Orthopaedics
Seoul National University Children’s Hospital
101 Daehang-ro Jongno-gu
Seoul 110-744, Republic of Korea
Email: tjcho@snu.ac.kr; tjcho.pos@gmail.com
Carmen L. De Cunto, MD
Professor and Chief
FOP Clinical Advisor, Argentina
Pediatric Rheumatology Section
Department of Pediatrics
Hospital Italiano de Buenos Aires
Gascón 450, 1181
Ciudad Autónoma de Buenos Aires, Argentina
Email: carmen.decunto@hospitalitaliano.org.ar
Patricia L.R. Delai, MD
Consultant Doctor for the Brazilian FOP Association
Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa
Office: Rua Pedro de Toledo 129 cj 121- Vila Clementino
Cep-04039-001
São Paulo-SP, Brazil
Email: patricia.delai@einstein.br; patricia.delai@gmail.com
Robert J. Diecidue, DMD, MD, MBA, MPH
Professor and Chair
Sidney Kimmel Medical College
Thomas Jefferson University
909 Walnut Street – Floor 3,
Philadelphia, PA 19107, USA
Email: Robert.Diecidue@jefferson.edu
Elisabeth Marelise W. Eekhoff, MD, PhD
Amsterdam University Medical Centers (Amsterdam UMC) location
VU University Medical Center (VUMC) Amsterdam
Department of Internal Medicine/Section Endocrinology
De Boelelaan 1117
1081HV Amsterdam, The Netherlands
Email: emw.eekhoff@vumc.nl
Clive S. Friedman, BDS (Diplomate AAPD)
Asst. Clinical Prof Schulich School of Medicine and Dentistry
Pediatric Oral Health and Dentistry
389 Hyde Park Road
London, Ontario N6H 3R8, Canada
Hospital email: clivesf@mac.com
Zvi Grunwald, MD
The James D. Wentzler Professor and Chairman Emeritus
Department of Anesthesiology
Thomas Jefferson University
111 South 11th Street, Suite G-8490
Philadelphia, PA 19107, USA
Email: zvi.grunwald@jefferson.edu
Nobuhiko Haga, MD
Professor
Department of Rehabilitation Medicine
Graduate School of Medicine
The University of Tokyo
7-3-1 Hongo, Bunkyo-ku
Tokyo 113-8655, Japan
Email: haga-rehtky@umin.net
Alberto Hidalgo-Bravo, MD, PhD
Professor
Universidad Nacional Autonoma de Mexico
Researcher at the Genomic Medicine Department
National Institute of Rehabilitation, Mexico City, Mexico
Email: dr_genetica@yahoo.com
Edward Hsiao, MD, PhD
Professor of Medicine
Department of Endocrinology, Faculty Practice
University of California-San Francisco
400 Parnassus Ave., 5th Floor A550
UCSF Box 1222
San Francisco, CA 94143-1222, USA
Email: edward.hsiao@ucsf.edu
Frederick S. Kaplan, MD
Isaac and Rose Nassau Professor of Orthopaedic Molecular Medicine
Co-Director, Center for Research in FOP & Related Disorders
The Perelman School of Medicine – The University of Pennsylvania
Department of Orthopaedic Surgery
3737 Market Street – Sixth Floor
Philadelphia, PA 19104, USA
Email: Frederick.Kaplan@uphs.upenn.edu
Dr. Richard Keen, BS, PhD, FRCP
Rheumatologist & Honorary Senior Lecturer in Metabolic Bone Disease
The Royal National Orthopaedic Hospital
Stanmore, Middlesex HA7 4LP
United Kingdom
Email: richard.keen1@nhs.net; DrRichardKeen@aol.com
Additional contact for Dr. Richard Keen:
Janice Cohen
Secretary to Dr Richard Keen/Dr Judith Bubbear
Centre for Metabolic Bone Disease
Royal National Orthopaedic Hospital
Brockley Hill, Stanmore, Middlesex HA7 4LP, United Kingdom
Email: Janice.cohen@nhs.net
Dr. Vrisha Madhuri
Professor Orthopaedics
Department Paediatric Orthopaedics
Ida Scudder Chair for Clinical Research
Christian Medical College Hospital
Vellore 632004
India
Email: madhuriwalter@cmcvellore.ac.in
Rolf Morhart, MD
Department of Pediatrics
Klinikum Garmisch- Partenkirchen
Auenstr.6
D- 82467 Garmisch- Partenkirchen, Germany
Email: rmorhart@web.de
J. Coen Netelenbos, MD, PhD
Professor Emeritus
Department of Internal Medicine
Division of Endocrinology
University Hospital Vrije Universiteit
De Boelelaan 1117/ P.O. Box 7057
1007 MB Amsterdam, The Netherlands
E-mail: cnetelen@planet.nl
Robert J. Pignolo, MD, PhD
Chair, Division of Geriatric Medicine & Gerontology
Robert and Arlene Kogod Professor of Geriatric Medicine
Mayo Clinic College of Medicine
200 First Street, SW
Rochester, MN 55905, USA
Email: Pignolo.Robert@mayo.edu
Christiaan Scott, MBChB, FCPaed (SA)
Paediatric Rheumatologist
Red Cross Children’s Hospital
University of Capetown Cape Town 7700, South Africa
Email: chris.scott@uct.ac.za
Michael Zasloff, MD, PhD
Adjunct Professor
Departments of Orthopaedic Surgery and Genetics
The Center for Research in FOP & Related Disorders
The University of Pennsylvania School of Medicine and
Professor, Departments of Surgery and Pediatrics
Director, Surgical Immunology
Georgetown University
Med/Dent NW 210
Washington, DC 20007, USA
Email: mzasloff@gmail.com
Keqin Zhang, MD, PhD
Director
Department of Endocrinology Tongji Hospital Shanghai Tongji University 389. Xin Cun Road
Shanghai 200065, P.R. China
Email: keqzhang2007@126.com
Emeritus Members
Matthew Brown, MBBS, MD, FRACP, FAHMS, FAA
Professor of Medicine, King’s College London
Director, Guy’s & St Thomas’ NHS Foundation Trust and King’s College London NIHR Biomedical Research Centre
Address: 8th Floor Tower Wing, Guy’s Hospital, Great Maze Pond, London SE1 9RT, England
Email: matt.brown@kcl.ac.uk
Maja DiRocco, MD
Head, Unit of Rare Diseases
Department of Pediatrics
IRCCS Giannina Gaslini Institute
Via Gerolamo Gaslini 5
16147 Genoa, Italy
Email: Majadirocco@gaslini.org